...and that's a good thing 'cause it means I'm over the ME/CFS crashof last week after my visit to Alabama:) So, on Wednesday, I left the house for the first time in a week for just a little trip to the apt. office. Then I got busy cleaning (since I hadn't felt up to that for a week), and I cooked some meals and froze them. I made chicken fingers, and froze some for Mike because he couldn't be home when the kids visited and there were none left to save for him after we all ate and ate and ate. Then, I decided to go ahead and make a big pot of vegetable soup, which is a staple around here. I'm going to have some for lunch and I have a bunch in the freezer for the days I don't want to cook.
Being so sick that I could usually not do the simplest things or stand for more than a few minutes, with days when I couldn't get out of bed, and then "coming back to life" has been an incredible experience. It often feels surreal. I'm still not well, and barring a miracle, I'll always have some ME/CFS symptoms and will have to be very cautious with my fragile health. But, the difference is like night and day. I sometimes think that my experience is similar to that of one coming out of a coma after many years. I had to get used to prices at the grocery store and discovered some new products because I was too ill to even go in a grocery store for almost 4 years. Because one of the symptoms of ME/CFS is "brain fog", what I did experience during those years is often blurry.
My favorite new ability is being able to walk outside and enjoy the air wafting against my face and the sun beating down on my head. I've always loved the sun, but because of the ME/CFS symptom of light sensitivity, I often had to be in darkness because light made me sicker. I feel like a butterfly released from the confines of the cocoon!
Another new "superpower" is, drum roll please, TALKING! I love to talk, and through the years of my brutal relapse with this dastardly disease, I sometimes almost lost my voice and more times than not, talking made me sicker. There are some sufferers with this disease who completely lose their voice.
Yesterday, I washed some clothes at the laundry room of the apts. and hung out at the pool while my clothes were doing their "thing". I swam a little, but I'm going to work back up slowly to the number of laps I swam before due to my little set-back last week. Last night, my granddog, Creamy, arrived for a weekend with GranJanne while her parents are celebrating their anniversary. So, I've been busy, and I'm thankful for my new perspective of what a blessing it is to be able to be busy:)
About Me
- beacheejanne
- I've been ill for several years, but have recently become well enough to get out and enjoy life again. I'm very grateful to God!
I love the beach!
Friday, July 01, 2011
Busy, Busy, Busy...
Posted by beacheejanne at 12:00 PM
Labels: Chronic Fatigue Syndrome, Chronic Illness, cooking, Thankfulness
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2 comments:
Hi Janne,
So glad you are feeling better. I have been and will continue to pray for you complete recovery! :)
Love to you all,
Jann
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